“It can feel like youre trapped inside a body that wont allow you to reach your full potential.
There are days when you mentally want to do things, but your body just cant handle it.
Its like being at war with yourself.”
Here’s what they said:
“Not every month is a bad endo month.”
“kindly dont discount our severe symptoms just because we have a few good days.”
hannahcharris1
“One of the symptoms can be GI distress.”
“There may be a day where all I can stomach is toast or soup.
Sometimes certain foods don’t agree with me, and sometimes I need the bathroom for a solid hour.
It’s painful and humiliating.
just don’t say anything or make faces, I’m already feeling those things myself.”
livelovelaugh071797
“Going to the bathroom is a chore.”
fillionfan4002
“Pregnancy does NOT cure it!”
“I had a gynaecologist and three older women try telling me it would.
Pregnancy did nothing for it, periods were just as hellish after pregnancy.
Oh, it can flare during pregnancy .”
Which kind of makes me feel embarrassed to be upset about my personal experience with it.
Oh and it got worse after I had a baby, so stop saying that’s a cure."
noimpillagingeverybody
“Dont ignore the pain, and fight for a doctor who will listen!”
Even when I dont actually have my period I have abdominal pain, and my energy is just gone.
I wouldnt wish this on my worst enemy."
kelseyt4f7b5ff3f
“I wish people knew that it’s about so much more than fertility.”
b4b8566c7c
“Stop telling me you know someone who was ‘cured’.”
“I have to survive in a body that is trying to destroy me.
Some days Im just devastated by this condtion.
It also often goes hand in hand with pelvic floor dysfunction, which can cause bowel and bladder problems.
We need support and understanding more than anything.
This is a chronic disease that causes chronic pain and chronic fatigue at the least.”
This is what makes me so furious.
hogwartsschool4
“In my case, it makes it very hard to be sexually active.”
aidensmith
“The pain is not normal.
Don’t let your doctor convince you it is.”
“Be prepared to advocate for yourself: push for diagnosis and treatment.
You will probably have to do this many times until you get it.
And don’t forget to be kind to yourself.
Practice self-care and if you need time out, take it.”
lliheltrut
“Its a very isolating and lonely condition.”
Sometimes it even pushes them away, or theyll get frustrated with you for always being in pain.
There are days when you mentally want to do things, but your body just cant handle it.
Its like being at war with yourself.
